My life was forever changed on a random Friday night in July 2020 (nope - not COVID) and has since been turned upside down while navigating 5 health systems to understand my constellation of issues, including gastroparesis, dysautonomia and polyneuropathy. I'm currently facing "forced early retirement" - or that's how I like to think about my time out on leave.
Join me on my journey of living with a poorly defined rare disease - how I'm attempting to redefine my life to accommodate all the features of my illness while ensuring that life isn't defined by it. I'm continuing to develop and find my voice for this personal blog. Take a look around and come back often to see how it's turning out. Be sure to drop me a line when you have a moment.
I look forward to hearing from you.
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